Thursday, 12 September 2013

Ticking away ~ Day 1051 ... always look on the bright side.

There's no doubt that my health has deteriorated quite suddenly in the last week or two. I can't walk very far at all now and have been pushed around three hospitals in a wheelchair.

On Tuesday I went to one hospital for a CT Scan and then another hospital to discuss the clinical trial and have bloodtests and an ECG.

Then yesterday, Wednesday, I went to a third hospital for a whole body bone scan. That was interesting, not so much as regards the medical matters but because of some of the 'characters' we saw.

Next Tuesday I'm due back at hospital number 2 to see whether it is worth putting me on the trial ... but before that I am due to go to a fourth hospital for an MRI scan.

As I sit here now (typing on my laptop) I am fine. It's only when I stand up or try to move that I experience any pain ... and some of the pain has been severe to put it mildly. It has made me cry. In the past three or four weeks it has, largely, been downhill, so much so that the lovely ladies who have been looking after me have had to push me around in a wheelchair ~ not so easy when there's 16 stones+ in the chair and the wheelchair has a wonky wheel. 

I sleep well though and only wake up in the night when 'nature calls'.

So, I'm not sure what next Tuesday 's appointment will result in ... oh yes, I don't think I've mentioned that I have been given some oral morphine to take if the pain gets too bad.

15 comments:

  1. Ugh. :( Down on pain that makes you cry! I sympathise - and with the wheelchair too. Hooray for oral morphine, if it can make you more comfortable. So when do you get the results of the CT, blood tests and whole body scan - or won't they tell you them, but simply tell you whether you're accepted onto the drugs trial?

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    1. The results will be available on Tuesday Jenny. My doctor is also involved in the clinical trial so he has a foot in both camps. It would make no sense to involve me in the trial though if I didn't meet the strict criteria because any changes in my health etc would be of no use.

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    2. No, indeed. It's great that your Doctor is involved with the clinical trial, as it puts you so much more in touch with what's going on with it. I'm keeping my fingers crossed.

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  2. Thank God for Morphine... And Oh.. Gee Whiz.. one thing after another... I sure hope they can find that you will be a good match for this new clinical trial..

    Your The Best Charlie..

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    1. Thank you for your kind words Barbara ...

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  3. I'm keeping my finger crossed I do hope you'll get on that clinical trial and ease your pain... Hugs.

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    1. I'm feeling a bit better today Diane ~ I haven't taken my morphine for a start.

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  4. I'm sorry that you have this blasted illness and for the pain that it brings to you, Charlie. I deeply appreciate your efforts in keeping us in the loop. I miss you when you aren't "here".

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    1. I hope to be around for a while yet Pet ...

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  5. Hi Charlie. I'm so sorry to hear you've been going through so much pain. At least the oral morphine should help quite a bit.

    I hope after all this effort and visiting so many different places, you get to go on the clinical trial. Keep us updated as and when you can.

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    1. I should know more tomorrow morning Mitch. In the meantime, thank you for your support.

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  6. Sorry things are a little crappy for you, right now...

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    1. Thank you Dudge ~ I have to say I have been feeling a little easier every day.

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  7. Any painkiller that keeps you more comfortable is a good thing. Gin works for some folk but I prefer port as it has some vitamins (according to Churchill). Wonky wheels drive me bananas on supermarket buggies. I am putting in an order for a new wheel, or whole chair (with a fleece lining). I too miss you when you are too busy to post.

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  8. It's not that I'm too busy to post, it's more that I lose my enthusiasm for it. I also like port but I've had no alcohol since I started with the painkillers. As mentioned above I hope to be around for some time ...

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