Time for another Prostap injection today. I watched the syringe slide into my tummy ... and I watched the syringe slide out. Fascinating. I hasten to add that it goes in at an angle and not straight in.
My next injection [in 12 weeks time] is the Friday before Good Friday. In other words the Friday before Easter.
My 'groin strain' is more uncomfortable than it used to be and I would think any 'serious' walking is out of the querstion for the time being. This is something of a setback for a walker [as in 'rambler']. I will just have to 'set back' [as some of our American cousins say] and dig the slowness for a time. It can be done.
The last time I saw my doctor he intimated that radiotherapy would hopefully improve the quality of life so lets hope it improves it enough to let me walk a bit more easily ... after I've had my CT Scan on the 10th January.
Finally if anyone thinks I'm doing these blogs to get attention then please move along as soon as possible. I don't ... I do it largely for anyone who finds themself in this sort of situation.
I've decided not to find myself in this situation, Charlie. Seriously, it must be a pain (literally I guess) for a walker. Personally, I don't mind being holed up indoors for the winter, but I know you tend to get out more. Hope the New Year sees things improve for you. Best wishes.
ReplyDeleteTo be honest Neil I am quite happy to potter around indoors although by the end of the day I can be frustrated by having stayed in. Ideally I would like the sun to shine and my ache to ease ~ it's not a lot to ask is it. Thank you for your good wishes ... the setiment is, of course, reciprocated.
DeleteAnyone who thinks that anyone in your position that could be blogging simply "for attention", needs to have their head banging against the nearest very hard thing. However, moving on - lol - how can you watch yourself having an injection? Oh my goodness! I have to look away AND close the eye that's nearest to the needle! LOL I'm okay about injections - I just don't want to have to see them. :) I hear you as regards the difficulty walking - when you've used walking as a tool (as you have and as I used to) losing even a small amount of that ability is rough. So here's to you regaining the use of your groin (in the nicest possible way, of course!). LOL
ReplyDeleteThere wasn't even any blood when I'd had this morning's injection Jenny. The syringe must be really fine and sharp.
DeleteHopefully I will overcome the difficulties and get out walking before I'm done.
Charlie, what can I say. My father in law is going through similar at present so I know a little of what you are dealing with. Stay positive and hopefully you'll be able to do more walking again soon. Radiotherapy, I understand, can be a big help. Keep the blogs coming. Take care. June @weegiewalker
ReplyDeleteThank you June. It's good of you to comment ... and appreciated. I hope your father-in-law is doing well. The next two or three weeks will be interesting.
DeleteSorry to hear you can't do much walking Charlie,I know how frustrating it is for you.As for blogging about it,I think it helps to know about things,rather than worry about the unknown.Ann
ReplyDeleteThank you Ann. I don't spend too much time on Google ... more important things to do ! :-)
DeleteLike Jenny, I'm also unable to watch having injections myself. I have to turn away. Knowing how you love nothing better than getting out and walking, I have an inkling of the frustration you must been feeling, being unable to get out. I'm sure you'll find something to occupy yourself, though. Has someone made a comment about your posts being some sort of attention-seeking? I just wondered why you felt you needed to add the proviso of the last sentence. I know it can't be anyone who considers you a friend, as we all understand why you post about your situation.
ReplyDeleteNo one has made a comment Mitch. I just wanted to make it clear ~ perhaps I'm being paranoid.
DeleteI hope things will go well and wishing you an happy new year.
ReplyDeleteAbout the attention seeking... well I did follow your blogs since Y360, way before you were sick and I appreciate very much your blogs, thanks to you for all the efforts.
Thank you Diane ...
Delete'Attention seeking"....that's sick. We know you better. I think we do anyhow. I personally admire you for sharing all this as I may need the info at anytime. You are not 'normalizing' the process or being blase, but I admire you for being so upfront and making it more acceptable to discuss. Knowledge is power.
ReplyDeleteThank you Karyn. I had no idea what to expect with cancer ... and I am beginning to get more of an idea with the lymphoedema and now the pain in my pelvis. Still hopefully the latter can be lessened in the next two or three weeks.
DeleteWho in the you know what was thinking this??? And as Karyn says.. Its a Sick thought.. So crazy of anyone to think that your doing this to get attention... I think anyone male or female would get more educated from someone going through what your going through than not..
ReplyDeleteYou very brave for doing this.. Oh..and by the way...LOL.. When I say "Set Back".. Its what I'm going through right now.. I have a set back with my move... I like the way you said it anyways.....LOL...
I have a friend who has Histiocytosio, Here is what I found online.. Although it usually affects Children, some adults get it also.
HistiocytosisEmail this page to a friendShare on facebookShare on twitterBookmark & SharePrinter-friendly version
Histiocytosis is a general name for a group of syndromes that involve an abnormal increase in the number of immune cells called histiocytes.
There are three major classes of histiocytoses:
Langerhans cell histiocytosis, which is also called histiocytosis X
Malignant histiocytosis syndrome (now known as T-cell lymphoma)
Non-Langerhans cell histiocytosis (also known as hemophagocytic syndrome)
This article focuses only on Langerhans cell histiocytosis (histiocytosis X)
Robert is on Chemo and has been for sometime now. At first when they diagnosed him, the Dr thought it was one form.. but just last year, another Dr saw him. And said no it was the bad one,,,, He will be off Chemo in about 4 weeks time. But still will have to wear a mask to protect himself. I only wish he would have done what you are doing. But, he is so sick sometimes now that he sleeps and gets up for a few hours and goes back to bed. He has a nurse that comes to his house and gives him his Chemo. And for that he is very thankful. It would not be fun if he had to go into the Hospital for it.
So, I'm very proud of what your doing here Charlie... Keep it up... And as Karyn says.. Knowledge is Power....
Thank you Barbara. I hope Robert's situation improves ...
ReplyDeleteI read your entry yesterday ... and became so angry at the thought that anyone would think you were writing for "attention" that I decided not to comment at the time. So here I am ... and I'm furious once again. Given that I rarely feel that emotion, I think that there is a strong message for me. I suspect that I'm rather protective of you.
ReplyDeleteThat being said, I'm glad that you continue with all of the medical treatment. I knew one fellow who was diagnosed with cancer (I forget what kind) and he totally gave up. It was sad on so many levels.
Stomach needles are interesting, aren't they. That's the site for my insulin injections ... but I use tiny, thin needles.
I'm thankful that you keep up-dating us, Charlie. All the best to you ... and a Happy New Year.
I hope you're feeling a little bit more in control now Pet. I don't often get angry either though I have been a little bit more short-tempered than in previous times. Anyway, thank you for being protective of me.
DeleteBearing in mind what you write of your friend, it would probably be relatively easy to give up. I must admit that late last night I was rather overwhelmed by the pointlessness of it all. This is one of the big difficulties ~ in the past I always knew I would get better. This time around I know that I'm going to get worse. So I went to better feeling low ...
... but I awoke with renewed enthusiasm and that enthusiasm is still with me.
The needle they use on my tummy is very, very fine ... quite long but very, very fine.
My updates will keep coming through for as long as I can manage them. Then when I can't I hope to have made plans for information to be posted on here. In the meantime Happy New Year to you Pet ...